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Support
Category Archives: Options
DCIS — New BMJ Study Supports Active Monitoring
A new study published in the British Medical Journal (BMJ) July 2025, adds to growing evidence that many women with a DCIS diagnosis may want to consider an active monitoring approach.
Posted in Health, informed choice, Informed Choice, Options, Overdiagnosis & Overtreatment, Research, Sanity, Support
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Tagged breast cancer, breast cancer awareness, DCIS, DCIS Active Monitoring, DCIS active surveillance, DCIS alternative approach, dcis alternatives, DCIS Breast Cancer, DCIS is not breast cancer, DCIS Overdiagnosis, dcis overtreatment, stage zero breast cancer
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DCIS is NOT Breast Cancer — An Online Support Group Leading a Paradigm Shift
A paradigm shift is defined as “an important change that happens when the usual way of thinking about or doing something is replaced by a new and different way.”
DCIS – Is Not Breast Cancer! — an online support group created in 2020 — has quickly attracted over 1.5k women with approximately 25 new requests to join each week. Continue reading →
Posted in Health, Options, Overdiagnosis & Overtreatment, Personal Stories, Sanity, Support
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Tagged breast cancer, breast cancer awareness, DCIS, DCIS active surveillance, DCIS alternative approach, dcis alternatives, DCIS Breast Cancer, DCIS is not breast cancer, DCIS Overdiagnosis, dcis overtreatment, DCIS Support Group
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22 Comments
“It’s a Way of Living” — Donna’s Checklist
Grateful for the interview today with Deb Hackenberry, facilitator of SHARE’s DCIS online support group… Deb: “If there was one thing you would want women to take away from your DCIS experience and 10+ years of research, what would that … Continue reading →
Posted in Health, Options, Overdiagnosis & Overtreatment, Personal Stories, Research, Resources, Sanity, Support
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DCIS Over-Diagnosis & Over-Treatment: New Facebook Group
Patients, researchers, advocates, journalists and organizations need to work together to understand and communicate better about this serious women’s health issue! Please join a new Facebook Group: DCIS Over-diagnosis and Over-treatment A forum for information, discussion, support, research, education, awareness … Continue reading →
Posted in Health, Options, Overdiagnosis & Overtreatment, Personal Stories, Research, Resources, Sanity, Support
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Tagged breast cancer awareness, breast cancer awareness month, breast cancer education, breast cancer overdiagnosis and overtreatment, breast cancer screenings, DCIS is not breast cancer, DCIS low-risk, DCIS Overdiagnosis, dcis overtreatment, DCIS study, harms of mammography, mammography screening limitations
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1 Comment
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 30 — NO “Survival” Benefit of Aggressive Treatments for DCIS — Women Not Informed
Did you know… Women diagnosed with DCIS, also known as “stage ZERO” breast cancer, are often rushed into extremely aggressive treatments (surgery, radiation and drugs) that actually have no survival benefit… yet this information is often not told to them. … Continue reading →
Posted in Health, Options, Research, Resources, Sanity
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Tagged DCIS, DCIS active surveillance, DCIS alternative approach, dcis alternative treatment, dcis alternatives, DCIS Breast Cancer, DCIS decisions, dcis dilemmas, DCIS individual risk, DCIS is not breast cancer, DCIS is not one size fits all, DCIS low-risk, DCIS Overdiagnosis, dcis overtreatment, DCIS study, DCIS treatment
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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 28 — Risks of Sentinel Lymph Node Biopsy! New Study Shows NO Benefit for DCIS
Did you know… Despite experts not recommending sentinel lymph node biopsies, between 17% and 40% of women with DCIS currently undergo this unnecessary procedure that comes with serious side effects. Risks of sentinel lymph node biopsies: Pain, wound infection, and … Continue reading →
Posted in Health, Options, Research, Resources, Sanity
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Tagged Ann Fonfa, Anniw Appleseed Project, DCIS, DCIS active surveillance, DCIS alternative approach, dcis alternatives, DCIS Breast Cancer, DCIS is not breast cancer, DCIS is not one size fits all, DCIS Overdiagnosis, dcis overtreatment, DCIS study, dcis treatment alternatives, Dr. Laura Esserman, sentinel lymph node biopsy, Shi-Yi Wang
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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 27 — Grade “F” in DCIS Communication
Did you know… Some health-care providers get an “F” in communication. Celebrity chef Sandra Lee said her doctors told her DCIS was a “ticking time bomb.” In January, 2010, when I brought an article, Take Carcinoma Out of DCIS and … Continue reading →
Posted in Health, Options, Personal Stories, Sanity
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Tagged DCIS, DCIS active surveillance, DCIS alternative approach, dcis alternatives, DCIS Breast Cancer, dcis communication, dcis dilemmas, DCIS is not breast cancer, DCIS is not one size fits all, DCIS low-risk, DCIS Overdiagnosis, dcis overtreatment, dcis statistics, DCIS treatment, Dr. Joane Elmore
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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 25 — Unbiased 2nd PATHOLOGY opinion is a MUST
Did you know… Aggressive treatments for DCIS are based on pathology — and 25% may be wrong. This happened to me. I had several opinions and 3 different pathology reports. My gut told me something was not right and I … Continue reading →
Posted in Health, Options, Personal Stories, Research, Resources, Sanity
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Tagged DCIS 2nd pathology opinion, DCIS active surveillance, DCIS alternative approach, dcis alternatives, DCIS Breast Cancer, DCIS individual risk, DCIS is not breast cancer, DCIS is not one size fits all, DCIS low-risk, DCIS Overdiagnosis, dcis overtreatment, DCIS treatment, dcis treatment alternatives, Dr. Susan Love DCIS
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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 24 — The Word “Cancer” is Scary & Misleading for DCIS
Did you know… Several breast cancer experts over the last 10+ years have questioned whether the word “carcinoma” should be removed from DCIS (Ductal Carcinoma in Situ). “Because of the noninvasive nature of DCIS, coupled with its favorable prognosis, strong … Continue reading →
Posted in Health, Options, Research, Sanity
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Tagged DCIS, DCIS active surveillance, DCIS alternative approach, dcis alternative treatment, dcis alternatives, DCIS Breast Cancer, dcis idle, DCIS is not breast cancer, DCIS is not one size fits all, DCIS low-risk, DCIS Overdiagnosis, dcis overtreatment, Dr Shelley Hwang, Dr. Laura Esserman, IDLE, NIH Consensus DCIS, PRECISION DCIS
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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 23 — Double Mastectomies for DCIS?
Did you know… “Many women who have DCIS are choosing not to just to get a mastectomy, but to get a bilateral mastectomy and have both breasts removed.” – Otis Brawley, NPR “More women with ductal carcinoma in situ (DCIS) … Continue reading →
Posted in Health, Options, Research
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Tagged DCIS, dcis bilateral mastectomy, DCIS Breast Cancer, DCIS double mastectomy, dcis overtreatment, Dr. Susan Love DCIS, Fear of cancer
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