Resources

DCIS Support Groups — in alignment with DCIS 411 

Expert 2nd Pathology Opinion:

Tests to help INDIVIDUALIZE Your “Risk”

  • DCISionRT: analyzes tissue from biopsy or surgery and gives a score to determine individual risk of future DCIS or invasive cancer as low or elevated.
  • Oncotype DX for DCIS: analyzes tissue from biopsy or surgery and gives a score to determine individual risk of future DCIS or invasive cancer as low or elevated.
  • The Van Nuys Prognostic Index: Offers a tailored prognosis based on DCIS size & grade, margins and patient age.

Alternative Imaging

Innovative Surgical Options

 

Clinical Trials for Low-risk DCIS

MDs leading Active Surveillance movement for low-risk DCIS

Media Stories — DCIS Overdiagnosis & Overtreatment

Must Watch Documentary Films:

Natural /Holistic Lifestyle Strategies

Naturopathic/Integrative Healthcare

Book Recommendations: 

  • Overdiagnosed: Making People Sick in the Pursuit of Health, Dr. H. Gilbert Welch, MD
  • Patient Heal Thyself, Jordan S. Rubin, N.M.D., PH. D.
  • Anticancer: A New Way of Life, David Servan-Screiber, MD, PhD
  • You Did What? Saying ‘No’ to Conventional Cancer Treatment, Hollie & Patrick Quinn
  • Herbal Medicine, Healing & Cancer: A Comprehensive Program for Prevention and Treatment, Donald Yance, Jr., C.N, M.H, A.H.G
  • Chris Beat Cancer: A Comprehensive Plan for Healing Naturally, Chris Wark
  • Mind Over Medicine, Scientific Proof That You Can Heal Your Life, Lissa Rankin, MD
  • Radical Remission, Kelly Turner, PhD
  • Cancer: Step Outside the Box, Ty Bollinger

 Nonprofit Organizations:

 

7 Responses to Resources

  1. Marimar says:

    This is great! Thanks for putting all these resources on here! 😀 Does anybody know of a DCIS support group in Southern Cailfornia? They have one in Northern CA but I can’t find one down here. I just called UCLA Simms/Mann Center and they told me they used to have one but not anymore. Thank you and white light! 😀

    Like

    • dp4peace says:

      I too have called around San Diego Cancer Centers and there is no DCIS specific support group. I went to a Breast Cancer support group and it wasn’t what I was looking for. Please let me know if you hear of a DCIS- specific support group in So. cal! Thanks Marimar….and white light back!

      Like

  2. Marimar says:

    Hi dp4peace,

    There’s a group in Palo Alto apparently. I called there and they gave me some numbers to call in Southern California. I will let you know if I find one down here. Thank you so much for this website. It’s a great source of information and makes me feel less alone with all this. Thank you and white light!

    Like

  3. Jaque Ledbetter says:

    How can I go about finding a doctor who will go along with an Clive surveillance treatment plan for me? Is there a list of doctors like that. I live in Idaho, work in Alaska, have family in Houston and family and property in Arizona. I could go most anywhere but west of the Mississippi would be my preference. How do I find patients and doctors who are doing this. Sadly, I can’t get in on the COMET trial so I am doctor shopping on my own.

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    • dp4peace says:

      Hi Jaque,
      Unfortunately most doctors are hesitant to support Active Surveillance for DCIS outside of a clinical trial. The Drs I have listed here are the ones who are the most outspoken publicly about “less is more” approach for low-risk DCIS. Probably best to post in Facebook Group: dcis integrative support & empowerment: https://www.facebook.com/search/top/?q=dcis%20integrative%20support%20%26%20empowerment
      Other option is to email Dr. Laura Esserman and ask her if she can recommend anyone in your preferred areas. Or you could see her in San Francisco at UCSF or one of her colleagues. Here is another good resource:https://dcispatient.com/ however the doctors listed are the same as here!
      Good luck in your search and please share what you learn here and/or in Facebook group! 🙂

      Like

    • June Ponder says:

      Jaque Ledbetter, I have 3 doctors on my team helping me with DCIS. Two of them are integrative oncologists board certified and neither would “approve” me not having surgery, but respected my choice to wait. My 3rd doctor is from China “board certified” there but not in US, and even she said there was nothing wrong with me doing the surgery, but has been most helpful with alternative things. One of the Integrative oncologists is Dr. Robert Thompson in Soldotna AK and has a satellite office in Anchorage. If you are going there and want to consult with him, his contact info is listed below, but I have never met him, all is done over the phone. He highly recommended Jane McLelland’s book “How to Starve Cancer” and has ordered tests to track my progress and off label medications that work against cancer.
      Aurorahealthandnutrition.com
      Dr. Robert G Thompson MD FACOG
      Integrative Medicine & Integrative Oncology
      188 W Marydale Ave 3500 LaTouche St.
      Soldotna, AK 99669 Suite 360
      907-260-6914 Phone Anchorage, AK 99508
      907-260-6924 Fax

      Like

      • June Ponder says:

        address on the left is in Soldotna, address on the right is in Anchorage. I realized after that the cut/paste mis-formatted. I would edit it if I could to make it more readable.

        Like

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