DCISionRT: analyzes tissue from biopsy or surgery and gives a score to determine individual risk of future DCIS or invasive cancer as low or elevated.
Oncotype DX for DCIS: analyzes tissue from biopsy or surgery and gives a score to determine individual risk of future DCIS or invasive cancer as low or elevated.
SonoCine Automated Whole Breast Ultrasound (AWBUS): Invented by 35 year expert radiologist Dr. Kevin Kelly, AWBUS can find tiny (4-5mm) INVASIVE cancers often missed on mammography, especially in dense breast tissue.
Dr. Deanna J. Attai, Assistant Clinical Professor of Surgery at the David Geffen School of Medicine, UCLA, Past- President of the American Society of Breast Surgeons, Active Surveillance for DCIS
Media Stories — DCIS Overdiagnosis & Overtreatment
Media — Featuring Donna’s Story and more: Inside Edition, ABC News, Women’s Health, The Daily Beast, KPBS/ NPR, The Washington Post, CNN, TIME, Prevention, Good morning America, etc.
This is great! Thanks for putting all these resources on here! 😀 Does anybody know of a DCIS support group in Southern Cailfornia? They have one in Northern CA but I can’t find one down here. I just called UCLA Simms/Mann Center and they told me they used to have one but not anymore. Thank you and white light! 😀
I too have called around San Diego Cancer Centers and there is no DCIS specific support group. I went to a Breast Cancer support group and it wasn’t what I was looking for. Please let me know if you hear of a DCIS- specific support group in So. cal! Thanks Marimar….and white light back!
There’s a group in Palo Alto apparently. I called there and they gave me some numbers to call in Southern California. I will let you know if I find one down here. Thank you so much for this website. It’s a great source of information and makes me feel less alone with all this. Thank you and white light!
How can I go about finding a doctor who will go along with an Clive surveillance treatment plan for me? Is there a list of doctors like that. I live in Idaho, work in Alaska, have family in Houston and family and property in Arizona. I could go most anywhere but west of the Mississippi would be my preference. How do I find patients and doctors who are doing this. Sadly, I can’t get in on the COMET trial so I am doctor shopping on my own.
Hi Jaque,
Unfortunately most doctors are hesitant to support Active Surveillance for DCIS outside of a clinical trial. The Drs I have listed here are the ones who are the most outspoken publicly about “less is more” approach for low-risk DCIS. Probably best to post in Facebook Group: dcis integrative support & empowerment: https://www.facebook.com/search/top/?q=dcis%20integrative%20support%20%26%20empowerment
Other option is to email Dr. Laura Esserman and ask her if she can recommend anyone in your preferred areas. Or you could see her in San Francisco at UCSF or one of her colleagues. Here is another good resource:https://dcispatient.com/ however the doctors listed are the same as here!
Good luck in your search and please share what you learn here and/or in Facebook group! 🙂
Jaque Ledbetter, I have 3 doctors on my team helping me with DCIS. Two of them are integrative oncologists board certified and neither would “approve” me not having surgery, but respected my choice to wait. My 3rd doctor is from China “board certified” there but not in US, and even she said there was nothing wrong with me doing the surgery, but has been most helpful with alternative things. One of the Integrative oncologists is Dr. Robert Thompson in Soldotna AK and has a satellite office in Anchorage. If you are going there and want to consult with him, his contact info is listed below, but I have never met him, all is done over the phone. He highly recommended Jane McLelland’s book “How to Starve Cancer” and has ordered tests to track my progress and off label medications that work against cancer.
Aurorahealthandnutrition.com
Dr. Robert G Thompson MD FACOG
Integrative Medicine & Integrative Oncology
188 W Marydale Ave 3500 LaTouche St.
Soldotna, AK 99669 Suite 360
907-260-6914 Phone Anchorage, AK 99508
907-260-6924 Fax
address on the left is in Soldotna, address on the right is in Anchorage. I realized after that the cut/paste mis-formatted. I would edit it if I could to make it more readable.
I can’t thank you enough for putting all these resources on here. I was recently diagnosed with IDC but the pathology report also mentions DCIS. I tried talking to the doctor here to understand if it’s still in the milk ducts or if it’s in fact IDC. The doctor just laughed and didn’t give me an answer. I’m waiting to hear back from other oncologists to get a second opinion. I really would like to do the tests you mentioned here, but I’m in Mexico now and I cannot send the biopsy samples overseas. Do you have any idea if there is anyone in Mexico doing these tests?
DCIS 411 
This is great! Thanks for putting all these resources on here! 😀 Does anybody know of a DCIS support group in Southern Cailfornia? They have one in Northern CA but I can’t find one down here. I just called UCLA Simms/Mann Center and they told me they used to have one but not anymore. Thank you and white light! 😀
LikeLike
I too have called around San Diego Cancer Centers and there is no DCIS specific support group. I went to a Breast Cancer support group and it wasn’t what I was looking for. Please let me know if you hear of a DCIS- specific support group in So. cal! Thanks Marimar….and white light back!
LikeLike
Hi dp4peace,
There’s a group in Palo Alto apparently. I called there and they gave me some numbers to call in Southern California. I will let you know if I find one down here. Thank you so much for this website. It’s a great source of information and makes me feel less alone with all this. Thank you and white light!
LikeLike
How can I go about finding a doctor who will go along with an Clive surveillance treatment plan for me? Is there a list of doctors like that. I live in Idaho, work in Alaska, have family in Houston and family and property in Arizona. I could go most anywhere but west of the Mississippi would be my preference. How do I find patients and doctors who are doing this. Sadly, I can’t get in on the COMET trial so I am doctor shopping on my own.
LikeLike
Hi Jaque,
Unfortunately most doctors are hesitant to support Active Surveillance for DCIS outside of a clinical trial. The Drs I have listed here are the ones who are the most outspoken publicly about “less is more” approach for low-risk DCIS. Probably best to post in Facebook Group: dcis integrative support & empowerment: https://www.facebook.com/search/top/?q=dcis%20integrative%20support%20%26%20empowerment
Other option is to email Dr. Laura Esserman and ask her if she can recommend anyone in your preferred areas. Or you could see her in San Francisco at UCSF or one of her colleagues. Here is another good resource:https://dcispatient.com/ however the doctors listed are the same as here!
Good luck in your search and please share what you learn here and/or in Facebook group! 🙂
LikeLike
Jaque Ledbetter, I have 3 doctors on my team helping me with DCIS. Two of them are integrative oncologists board certified and neither would “approve” me not having surgery, but respected my choice to wait. My 3rd doctor is from China “board certified” there but not in US, and even she said there was nothing wrong with me doing the surgery, but has been most helpful with alternative things. One of the Integrative oncologists is Dr. Robert Thompson in Soldotna AK and has a satellite office in Anchorage. If you are going there and want to consult with him, his contact info is listed below, but I have never met him, all is done over the phone. He highly recommended Jane McLelland’s book “How to Starve Cancer” and has ordered tests to track my progress and off label medications that work against cancer.
Aurorahealthandnutrition.com
Dr. Robert G Thompson MD FACOG
Integrative Medicine & Integrative Oncology
188 W Marydale Ave 3500 LaTouche St.
Soldotna, AK 99669 Suite 360
907-260-6914 Phone Anchorage, AK 99508
907-260-6924 Fax
LikeLike
address on the left is in Soldotna, address on the right is in Anchorage. I realized after that the cut/paste mis-formatted. I would edit it if I could to make it more readable.
LikeLike
I can’t thank you enough for putting all these resources on here. I was recently diagnosed with IDC but the pathology report also mentions DCIS. I tried talking to the doctor here to understand if it’s still in the milk ducts or if it’s in fact IDC. The doctor just laughed and didn’t give me an answer. I’m waiting to hear back from other oncologists to get a second opinion. I really would like to do the tests you mentioned here, but I’m in Mexico now and I cannot send the biopsy samples overseas. Do you have any idea if there is anyone in Mexico doing these tests?
LikeLike
You can contact PreludeDx with your question: https://preludedx.com/contact-us/
Please share what you find out.
Hugs and best wishes! Donna
LikeLike