MDs leading Active Surveillance movement for low-risk DCIS
- Dr. Shelley Hwang, Chief of Breast Surgery, Duke Cancer Institute, Why Doctors Are Rethinking Breast-Cancer Treatment, TIME Magazine, Oct, 2015
- Dr. Ann Partridge, Founder and Director, Program for Young Women with Breast Cancer; Director, Adult Survivorship Program; Associate Professor of Medicine, Harvard Medical School Dana-Farber to study ways to reduce overtreatment of DCIS
- Dr. Alastair Thompson, Professor, Department of Breast Surgical Oncology, Division of Surgery, The University of Texas MD Anderson Cancer Center, Study seeks best way to manage breast ‘pre-cancer’
- Dr. Wen Liang, Anne Arundel Medical Center’s Rebecca Fortney Breast Center, Seeking less aggressive breast cancer treatment, Anne Arundel Medical Center takes part in clinical trial
- Dr. Laura Esserman, Director of the Breast Care Center at UCSF, A Breast Cancer Surgeon Who Keeps Challenging the Status Quo
- Dr. Susan Love, Chief visionary officer of Dr. Susan Love Research Foundation (DSLRF), DCIS Video 2016; DCIS: The Measure of the Margin
- Dr. Deanna J. Attai, Assistant Clinical Professor of Surgery at the David Geffen School of Medicine at the University of California Los Angeles, and is a Past- President of the American Society of Breast Surgeons, Active Surveillance for DCIS
Expert 2nd Opinions:
- Dr. Jean Simpson: 2nd Pathology opinion
- Dr. Melvin Silverstein: Specialist in “Oncoplastic surgery” –offers lumpectomies with breast reconstruction for those wanting to avoid mastectomy
- Johns Hopkins 2nd opinion mammogram evaluation: service requires Birads 4 or higher. Can be referred by Dr. or patient. If insurance doesn’t cover, fee is $150
Tests and Tools to INDIVIDUALIZE Your “Risk”
- DCISionRT: analyzes tissue from biopsy or surgery and gives a score to determine individual risk of future DCIS or invasive cancer as low or elevated.
- Oncotype DX for DCIS: analyzes tissue from biopsy or surgery and gives a score to determine individual risk of future DCIS or invasive cancer as low or elevated.
- The Van Nuys Prognostic Index: offers a more tailored prognosis than “one size fits all” treatment approach. Based on DCIS size & grade, margins and patient age.
Alternative Ways to MONITOR DCIS
- SonoCine Automated Whole Breast Ultrasound (AWBUS): Invented by 35 year expert radiologist Dr. Kevin Kelly, AWBUS can find tiny invasive cancers often missed on mammography, especially in dense breast tissue.
- “Dedicated” breast MRI
- Thermography
Online DCIS Support Group
- DCIS Integrative Support & Empowerment (Facebook Group)
Natural /Holistic Lifestyle Strategies
- Proactive Breast Health Club (DCIS Redefined)
- Donna’s Choice: Global Healing from the Inside Out (Facebook Group)
- Chris Beat Cancer (chemo-free colon cancer survivor and natural healing guru)
- Elyn Jacobs (breast cancer survivor, patient advocate/researcher, wellness coach)
- Crazy Sexy Wellness (Kris Carr)
Naturopathic/Integrative Healthcare
- Bastyr University Clinic — San Diego
- UC San Diego Center for Integrative Medicine
- American Association of Naturopathic Physicians
- Life Extension Directory of Innovative Clinics
- Lotus Rain Clinic, San Diego (Dr. Kristine Reese)
DCIS Over-treatment & Donna’s story and in the Media
- Media — Inside Edition, ABC News, Women’s Health, The Daily Beast, KPBS/ NPR, The Washington Post, CNN, TIME, Prevention, Good morning America, etc:
- When Cancer is not Cancer, The California Sunday Magazine, DECEMBER 7, 2014
- Take Carcinoma Out of DCIS and Ease Off Treatment, January, 2010
- A Breast Cancer You May Not Need to Treat, Sept. 2011- More.com
- The American Holistic Health Association: What Doctors Don’t Tell You About Breast Cancer: Half the time it’s not cancer at all
- Emerging Ways to Treat and Prevent Breast Cancer – Dr. Sheldon M. Feldman, NY Presbyterian Hospital , Aug. 5, 2011
- Don’t Let Fear Drive Early Breast Cancer Treatment, Aug 20, 2010
Donna’s Book Recommendations:
- Overdiagnosed: Making People Sick in the Pursuit of Health, Dr. H. Gilbert Welch, MD
- Patient Heal Thyself, Jordan S. Rubin, N.M.D., PH. D.
- Anticancer: A New Way of Life, David Servan-Screiber, MD, PhD
- You Did What? Saying ‘No’ to Conventional Cancer Treatment, Hollie & Patrick Quinn
- Herbal Medicine, Healing & Cancer: A Comprehensive Program for Prevention and Treatment, Donald Yance, Jr., C.N, M.H, A.H.G
- Mind Over Medicine, Scientific Proof That You Can Heal Your Life, Lissa Rankin, MD
- Radical Remission, Kelly Turner, PhD
- The pH Miracle: Balance Your Diet, Reclaim Your Health, Robert O. Young, PhD and Shelly R. Young
- Cancer: Step Outside the Box, Ty Bollinger
- Crazy Sexy Cancer Tips, Kris Carr
Nonprofit Organizations:
- DCIS Redefined
- Give Wellness
- Dr. Susan Love Research Foundation
- The Mederi Foundation
- Breast Cancer Action
- National Breast Cancer Coalition
- Environmental Working Group
This is great! Thanks for putting all these resources on here! 😀 Does anybody know of a DCIS support group in Southern Cailfornia? They have one in Northern CA but I can’t find one down here. I just called UCLA Simms/Mann Center and they told me they used to have one but not anymore. Thank you and white light! 😀
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I too have called around San Diego Cancer Centers and there is no DCIS specific support group. I went to a Breast Cancer support group and it wasn’t what I was looking for. Please let me know if you hear of a DCIS- specific support group in So. cal! Thanks Marimar….and white light back!
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Hi dp4peace,
There’s a group in Palo Alto apparently. I called there and they gave me some numbers to call in Southern California. I will let you know if I find one down here. Thank you so much for this website. It’s a great source of information and makes me feel less alone with all this. Thank you and white light!
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