Category Archives: Personal Stories

DCIS Support — Find Your Tribe on Facebook!

There are five distinctly different “DCIS support groups” on Facebook. Some have strict rules. Differing viewpoints have led to heated debates and frustrations. Hopefully everyone can find a support tribe they most align with. Some may feel they benefit from … Continue reading

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NO Informed Consent — Harmed by 5 Titanium Clips in Breast — DCIS Patient Shares Her Story and Advocacy

by Lisa Nash (Presented at the State House in Boston to Senators and legislative staff): Hello, my name is Lisa Nash and I am here to speak with you about An Act Promoting Patient Engagement in Health Care Decisions. I … Continue reading

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Donna’s 9 Year Update — Top 3 Questions, Lessons Learned, and 2019 Projects

If not for photos with my children… I would not believe it’s been nine years since my journey with DCIS began. TOP 3 QUESTIONS I AM OFTEN ASKED 1. Did I ever have a recurrence of DCIS or invasive cancer? … Continue reading

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Thankful for PCORI & Patient-Centered Research

I recently had the opportunity to attend the annual meeting of  PCORI — Patient-Centered Outcomes Research Institute. Three days of presentations and panel discussions all focused on one recurring theme: Patient voices, preferences, values, experiences, and outcomes matter. I felt … Continue reading

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A New Bio-marker Test for DCIS = Peace of Mind for Thousands of Women

If you are one of the 60,000 + women diagnosed with DCIS this year, you now have a way to gain more peace of mind about what to think and do about it. A company called PreludeDx has scientifically validated … Continue reading

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Active Surveillance P L U S — Donna’s Vision

“Active surveillance” of a potential cancerous condition through periodic medical imaging in itself can be extremely stressful — and the anxiety, worry and fear of cancer developing or progressing may not go away as time goes on.    Active Surveillance … Continue reading

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Aggressive Treatments for DCIS — or NOT? New Research Sheds Light

I hope every woman diagnosed with low-risk DCIS today knows they have a great opportunity that did not exist for me (and thousands others) in the past.

I feel an incredible sense of gratitude to all the forces and people that have made the COMET Study possible — to the physicians and cancer centers who are making it available — and to the women who will participate. Thank you! Continue reading

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