Awesome Interview!! Inspiration for DCIS 411 — Informed Choices and Healthy Living Over Fear Fear Fear!
Cynthia Toussant and I discuss how we KNEW IN OUR GUT something wasn’t right with the immediate rush to surgically remove DCIS!
Mis-Diagnosed with DCIS at Age 26 and 38 Weeks Pregnant: How Intuition, Non-stop Research and a 2nd Pathology Opinion Changed My Life
My gut and intuition told me to research my head off and to understand what’s going on. I learned very fast that just because you have a “low grade” “stage zero” breast cancer that doesn’t mean the treatment is less than any other INVASIVE breast cancer.
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 30 — NO “Survival” Benefit of Aggressive Treatments for DCIS — Women Not Informed
Did you know… Women diagnosed with DCIS, also known as “stage ZERO” breast cancer, are often rushed into extremely aggressive treatments (surgery, radiation and drugs) that actually have no survival benefit… yet this information is often not told to them. Instead women are given confusing “risk reduction” statistics with each of the “standard of care” […]
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 24 — The Word “Cancer” is Scary & Misleading for DCIS
Did you know… Several breast cancer experts over the last 10+ years have questioned whether the word “carcinoma” should be removed from DCIS (Ductal Carcinoma in Situ). “Because of the noninvasive nature of DCIS, coupled with its favorable prognosis, strong consideration should be given to remove the anxiety-producing term “carcinoma” from the description of DCIS.” […]
The Importance of Being Informed, Treated with Compassion, and Advocating for Active Surveillance — Nancy Riopel’s Enlightening DCIS Story
“Please, if you take one thing from my experience, consider the importance of being informed and being willing to advocate for the treatment options that you feel are best for you. I am not DCIS, I am not a ‘tumor’ and I am not just a ‘patient’. I am a mother, a daughter, a sister, […]
Thankful for PCORI & Patient-Centered Research
I recently had the opportunity to attend the annual meeting of PCORI — Patient-Centered Outcomes Research Institute. Three days of presentations and panel discussions all focused on one recurring theme: Patient voices, preferences, values, experiences, and outcomes matter. I felt like I was in patient advocate heaven. Suzannah Fox, former Chief Technology Officer of the […]
What is “Low-risk” DCIS & Why is The COMET Study Urgently Needed?
The COMET Study is the nation’s first prospective, randomized clinical trial aimed at resolving an ongoing debate about the best way to manage “low-risk” DCIS (Ductal Carcinoma In Situ), also known as “stage zero” breast cancer. “This is a trial whose time has come. Many of us have felt for two decades that this study […]
DCIS Decision-Making — What Makes Us Different?
Why is it that a majority of women diagnosed with DCIS choose the path of “standard” aggressive treatment (mastectomy or lumpectomy plus weeks of radiation and years of “prevention” drugs), while a small minority say “NO WAY — this is OVER-TREATMENT?” Is it fear of invasive breast cancer and potential early death? Is it a […]
Why the “Standard of Care” Must Change
Despite clear evidence from the most extensive study to date on DCIS — that there is no benefit to surgery, radiation and drugs (“standard of care” treatment for DCIS) — and despite significant harms of these treatments — doctors will most likely not be making any protocol changes. During a KPBS interview, Dr Reema Batra, stated the “standard […]
ACTIVE SURVEILLANCE — DO YOU WISH YOU WOULD HAVE HAD THIS AS A TREATMENT OPTION?
Some doctors are studying whether Active Surveillance (following you closely and not operating on you unless you get cancer) may be a good alternative to surgery for DCIS. Do you wish you were offered Active Surveillance as a treatment option after being diagnosed with DCIS from a biopsy? If you had the same diagnosis today and […]
Interview with Donna: The Dilemma of Overdiagnosis
Click here to listen to a very important discussion/interview regarding my experiences with DCIS, the problem with mammograms and the “Dilemma of Over-diagnosis.” Thank you Connie Bowman for shining the light on this very important topic on your podcast “HAPPY HEALTHY YOU”!
Radio Interview with Donna Pinto: “Listening to Your Inner Guidance”
Have a listen to my interview today with Kathleen O’Keefe-Kanavos (Kat), author of “Surviving Cancerland: Intuitive Aspects of Healing.” Click here. Check out Kat’s website here.