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Donna Pinto — Co-author and Collaborator on DCIS Research Publications

DCIS Research Publications

Donna Pinto has contributed as a patient advocate co-author and collaborator on multiple peer-reviewed DCIS research publications associated with the COMET Study for Low-risk DCIS and the Cancer Grand Challenges PRECISION (Prevent Ductal Carcinoma in Situ Overtreatment Now ) Consortium, including publications in BMJ Open, JAMA, JAMA Oncology, British Journal of Cancer, and NPJ Breast Cancer.”

Donna also co-authored Plain Language Summaries (PLS) on multiple international DCIS research publications through the COMET Study and PRECISION, helping bridge scientific research and patient-centered communication.

Donna in the Media ⟶

PRECISION Team (PREvent ductal Carcinoma In Situ Invasive Overtreatment Now), Amsterdam, 2019

COMET Publications

  1. “The COMET Trial: Comparison of Operative versus Monitoring and Endocrine Therapy for Low-Risk DCIS”
    BMJ Open (2019)
    Donna Pinto listed as co-author as part of the COMET Patient Leadership Team.
  2. “Active Monitoring With or Without Endocrine Therapy for Low-Risk Ductal Carcinoma In Situ: The COMET Randomized Clinical Trial”
    JAMA (2024)
    Donna Pinto listed among study investigators/co-authors.
  3. “Patient-Reported Outcomes for Low-Risk Ductal Carcinoma In Situ: A Secondary Analysis of the COMET Randomized Clinical Trial”
    JAMA Oncology (2025)
    Donna Pinto included as co-author.

  4. Impact of an online decision support tool for ductal carcinoma in situ (DCIS) using a pre-post design (AFT-25), Springer Nature (2024)

PRECISION Scientific Publications

  1. “The impact of patient characteristics and lifestyle factors on the risk of an ipsilateral event after a primary DCIS: A systematic review”
    The Breast (2020)
    Donna Pinto listed as co-author on behalf of PRECISION.
    Includes Plain Language Summaries in English, Spanish, and Dutch.
  2. “Ductal carcinoma in situ: to treat or not to treat, that is the question”
    British Journal of Cancer (2019)
    Donna Pinto participated as a PRECISION patient advocate contributor.
  3. “Treating (low-risk) DCIS patients: What can we learn from real-world cancer registry evidence?”
    Breast Cancer Research and Treatment (2021)
    Includes Plain Language Summaries in English, Spanish, and Dutch.
  4. “Breast adipocyte size associates with ipsilateral invasive breast cancer risk after ductal carcinoma in situ”
    NPJ Breast Cancer (2021)
    Includes Plain Language Summaries in English, Spanish, and Dutch.
  5. “Preferences of Treatment Strategies among Women with Low-Risk DCIS and Oncologists”
    Cancers (2021)
    PRECISION Consortium publication.
  6. “Application of deep learning on mammographies to discriminate between low and high-risk DCIS for patient participation in active surveillance trials”
    Cancer Imaging (2024)
    PRECISION Consortium Steering Group publication.
  7. “DCIS knowledge of women choosing between active surveillance and surgery for low-risk DCIS”
    The Breast (2024)
    PRECISION Consortium publication.
  8. “Ductal carcinoma in situ of the breast: finding the balance between overtreatment and undertreatment”
    The Lancet (2024)
    PRECISION-associated publication.
  9. “Conquering Overtreatment of DCIS: Lessons from PRECISION”
    Cancer Discovery (2025)
    Published on behalf of the Cancer Grand Challenges PRECISION Consortium.
  10. “A morphometric signature to identify ductal carcinoma in situ with a low risk of progression”
    NPJ Precision Oncology (2025)
    Includes the Grand Challenge PRECISION Consortium.

  11. Enabling DCIS subtyping: leveraging foundation models for robust grading and molecular biomarker scoring, Nature, May 2026

Plain Language Summaries (PLS) on the DCIS PRECISION Website

Donna Pinto also helped advance patient-centered communication through the PRECISION Plain Language Summary initiative launched by the patient advocate team.

The following publications specifically include publicly available Plain Language Summaries (English/Spanish/Dutch) on the DCIS PRECISION website:

  • “The impact of patient characteristics and lifestyle factors on the risk of an ipsilateral event after a primary DCIS”
  • “Treating (low-risk) DCIS patients: What can we learn from real-world cancer registry evidence?”
  • “Breast adipocyte size associates with ipsilateral invasive breast cancer risk after ductal carcinoma in situ”
  • “Calcification Microstructure Reflects Breast Tissue Microenvironment”

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