Tag Archives: DCIS

Donna’s 9 Year Update — Top 3 Questions, Lessons Learned, and 2019 Projects

If not for photos with my children… I would not believe it’s been nine years since my journey with DCIS began. TOP 3 QUESTIONS I AM OFTEN ASKED 1. Did I ever have a recurrence of DCIS or invasive cancer? … Continue reading

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Thankful for PCORI & Patient-Centered Research

I recently had the opportunity to attend the annual meeting of  PCORI — Patient-Centered Outcomes Research Institute. Three days of presentations and panel discussions all focused on one recurring theme: Patient voices, preferences, values, experiences, and outcomes matter. I felt … Continue reading

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What is “Low-risk” DCIS & Why is The COMET Study Urgently Needed?

The COMET Study is the nation’s first prospective, randomized clinical trial aimed at resolving an ongoing debate about the best way to manage “low-risk” DCIS (Ductal Carcinoma In Situ), also known as “stage zero” breast cancer. “This is a trial … Continue reading

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DCIS — Beyond “One-Size Fits-All”

Today, women newly diagnosed with DCIS have more support, options, and resources than ever before. Below are eight ways to help you create an “individualized” and empowered plan-of-action… #1.  CONFIRM YOUR PATHOLOGY 2nd Pathology Opinion #2.  ASK YOUR DOCTOR TO … Continue reading

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Evaluating DCIS treatments — do you know your “survival” statistics?

“There is strong evidence that treatment of DCIS in most women has no clear effect on mortality reduction.” – Finding the balance between over- and under-treatment of ductal carcinoma in situ (DCIS) “Risk of development of metastases and/or death in … Continue reading

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Keeping Patient Perspectives at the Forefront of DCIS Research

Patient Advocates from across the US and around the world came together to share insights about DCIS at the 2017 San Antonio Breast Cancer Symposium. The COMET Study Patient Leadership Team presented “Changing the DCIS Conversation: Development of an Alternative Discourse by … Continue reading

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Active Surveillance P L U S — Donna’s Vision

“Active surveillance” of a potential cancerous condition through periodic medical imaging in itself can be extremely stressful — and the anxiety, worry and fear of cancer developing or progressing may not go away as time goes on.    Active Surveillance … Continue reading

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