Keeping Patient Perspectives at the Forefront of DCIS Research

COMET PLTPatient Advocates from across the US and around the world came together to share insights about DCIS at the 2017 San Antonio Breast Cancer Symposium.

The COMET Study Patient Leadership Team presented “Changing the DCIS Conversation: Development of an Alternative Discourse by Patient Advocate Stakeholders in the COMET Study.”

PLT POSTER

Ellen Jelle Deb DonnaAdvocates from the US, UK and the Netherlands highlighted their role as “partners” on PRECISION — “PREvent ductal Carcinoma In Situ Invasive Overtreatment Now.”

This international initiative was awarded Cancer Research UK’s Grand Challenge. Led by Dr. Jelle Wesseling of the Netherlands Cancer Institute, PRECISION aims to distinguish between lethal cancers that need treating, and non-lethal cancers that don’t.

 

Help keep patient perspectives at the forefront of DCIS research!  Join the conversation by commenting below or on social media!

 

 

 

 

About dp4peace

I was born and raised in New Jersey and moved to the San Fernando Valley of Los Angeles when I was 12. I graduated with a BA in Journalism/Advertising from San Diego State University. After a short stint in magazine ad sales in LA, I was offered my dream job working for Club Med. I spent two years working at resorts in Mexico, The Bahamas, The Dominican Republic and Colorado. My husband Glenn & I met while working at Club Med in Ixtapa, Mexico. We returned to "real life/jobs" for three years before we embarked on a two year honeymoon around the world. Together we wrote a book called "When The Travel Bug Bites: Creative Ways to Earn, Save and Stay Abroad." I am also the author of "Cheatnotes on Life: Lessons From The Classroom of Life," a quote book for new graduates. Glenn & I live in San Diego with our two boys: Skyler, the yogi and Cody, the buddha! I enjoy running, yoga and working on projects that bring more peace, health and light to our world.
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2 Responses to Keeping Patient Perspectives at the Forefront of DCIS Research

  1. Laura says:

    Congratulations on your recent presentation. I continue to be inspired by this research to better stratify women diagnosed with DCIS into appropriate risk categories. I completed a bilateral mastectomy in December 2017 following a DCIS diagnosis and donated the tissue to a research database at UAMS… I am hopeful that my pathology can contribute to exactly what this study seeks to define. It gives me peace of mind about my treatment decision to believe it may help others in the future. Thanks for your advocacy, Donna.

    Liked by 1 person

    • dp4peace says:

      Wow Laura….thank you so much for your comment and your contribution via tissue donation to helping researchers better understand DCIS!! I don’t recall being asked about donating my tissue samples, but I think this is so important!

      Like

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