Thankful for PCORI & Patient-Centered Research
I recently had the opportunity to attend the annual meeting of PCORI — Patient-Centered Outcomes Research Institute. Three days of presentations and panel discussions all focused on one recurring theme: Patient voices, preferences, values, experiences, and outcomes matter. I felt like I was in patient advocate heaven. Suzannah Fox, former Chief Technology Officer of the […]
DCIS — Beyond “One-Size Fits-All”
Today, women newly diagnosed with DCIS have more support, options, and resources than ever before. Below are eight ways to help you create an “individualized” and empowered plan-of-action… #1. CONFIRM YOUR PATHOLOGY Dr. David J Dabbs, Prelude Dx Second Opinion Service Dr. Jean Simpson #2. ASK YOUR DOCTOR TO ORDER A BIOLOGICAL RISK ASSESSMENT TEST […]
Keeping Patient Perspectives at the Forefront of DCIS Research
Patient Advocates from across the US and around the world came together to share insights about DCIS at the 2017 San Antonio Breast Cancer Symposium. The COMET Study Patient Leadership Team presented “Changing the DCIS Conversation: Development of an Alternative Discourse by Patient Advocate Stakeholders in the COMET Study.” Advocates from the US, UK and the Netherlands […]