Donna’s 16 Year Update — Smashing Myths, Advocating for Change & My Nonprofit Mission

Despite being told, “Your breast is like spoiled soup; it isn’t worth saving,” I declined all further “standard of care” treatment recommendations in 2011. I said good-bye forever to fear-mongering doctors and forged my own path to health and well-being. It’s now 16 years later. I never developed invasive cancer. I became a passionate advocate […]

DCIS & Cryoablation? Guest Blog

My Croablation Journey by Christine B. I was diagnosed with DCIS stage 0 grade 2 June 2017. I was immediately turned over to a surgeon who strongly suggested a lumpectomy, radiation, and a hormone blocker. Better yet a mastectomy due to my small breasts. I had never heard of DCIS until I was diagnosed! So […]

31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 11 — It’s Ok to Opt Out of Mammograms

Did you know… It’s Ok to Opt Out of Mammograms. In this must-read article, science writer, Christie Aschwanden lists key points (see below) of some of the “little known” harms of screening. She encourages women to review a chart on “Benefits and Harms of Screening Mammography.” Key points from article: While 61 percent of women […]

31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 10 — UNACCEPTABLE Rates of Failed Surgeries & When to Say “NO MORE”

Did you know… The percentage of women who need a 2nd or 3rd surgery after a lumpectomy, (also called breast conserving surgery (BCS) or partial mastectomy) is alarmingly high — especially for DCIS (stage ZERO breast cancer).  One study showed 48% to 59%. I wrote The Insanity of DCIS Surgery after a 2nd surgery in Oct […]

DCIS Support — Find Your Tribe on Facebook!

There are five distinctly different “DCIS support groups” on Facebook. Some have strict rules. Differing viewpoints have led to heated debates and frustrations. Hopefully everyone can find a support tribe they most align with. Some may feel they benefit from joining more than one group. Below are perspectives and descriptions of  differing DCIS Facebook “support […]

Donna’s 9 Year Update — Top 3 Questions, Lessons Learned, and 2019 Projects

If not for photos with my children… I would not believe it’s been nine years since my journey with DCIS began. TOP 3 QUESTIONS I AM OFTEN ASKED 1. Did I ever have a recurrence of DCIS or invasive cancer?    NO! Donna’s Journey starting at Part 2 — June 2011 details my experience with […]

What is “Low-risk” DCIS & Why is The COMET Study Urgently Needed?

The COMET Study is the nation’s first prospective, randomized clinical trial aimed at resolving an ongoing debate about the best way to manage “low-risk” DCIS (Ductal Carcinoma In Situ), also known as “stage zero” breast cancer. “This is a trial whose time has come. Many of us have felt for two decades that this study […]

Keeping Patient Perspectives at the Forefront of DCIS Research

Patient Advocates from across the US and around the world came together to share insights about DCIS at the 2017 San Antonio Breast Cancer Symposium. The COMET Study Patient Leadership Team presented “Changing the DCIS Conversation: Development of an Alternative Discourse by Patient Advocate Stakeholders in the COMET Study.” Advocates from the US, UK and the Netherlands […]

Active Surveillance P L U S (Proactive – Lifestyle – Understanding – Support) — Donna’s Vision

“Active surveillance” of a “potential cancerous condition” through periodic medical imaging in itself can be extremely stressful — and the anxiety, worry, and fear of cancer developing or progressing may not go away as time goes on.    Active Surveillance P L U S is my vision. It is a holistic approach to cancer prevention, […]

Aggressive Treatments for DCIS — or NOT? New Research Sheds Light

I hope every woman diagnosed with low-risk DCIS today knows they have a great opportunity that did not exist for me (and thousands others) in the past.

I feel an incredible sense of gratitude to all the forces and people that have made the COMET Study possible — to the physicians and cancer centers who are making it available — and to the women who will participate. Thank you!

Video of Donna’s Journey: 2009 – 2015

It’s been 6 years. Click on this link to watch a video summarizing my journey. In addition to empowering women diagnosed with DCIS, I recently created a nonprofit with the mission to empower women to #LiveWELL and #BeWISE. Please check out: Give Wellness. Thank you for your love and support!