Aggressive Treatments for DCIS — or NOT? New Research Sheds Light

photo-1440968872456-dec3196b9bee - Copy (2)Where are the studies of women (like me) who have taken a less aggressive path for “low-risk” DCIS? 

Until now — they didn’t exist.

Thanks to $13.4 million in funding from the Patient-Centered Outcomes Research Institute (PCORI), a long over-due clinical trial for DCIS has officially launched.

comet-logo

It’s called The COMET Study.

The goal is to learn if women with low-risk DCIS can avoid aggressive treatments and their physical and/or emotional side effects.

COMET stands for Comparison of Operative to Monitoring and Endocrine Therapy. It is a randomized prospective study that will enroll 1200 women at 100 cancer centers throughout the US.

My Role as a Patient Advocate

comet_3In 2016, I was invited to be one of four patient advocates on The COMET Study team.

We have enjoyed the opportunity to keep patient perspectives at the forefront of the study as well as this new website: www.dcisoptions.org

Since my DCIS diagnosis in 2010, I have been following and sharing the forward-thinking wisdom of a handful of breast cancer experts who were speaking out for the need for studies like COMET. It is such a blessing to now be working with some of these compassionate doctors who are leading the COMET Study…

In this video Dr. Shelley Hwang and I share patient and physician perspectives on DCIS.

 

donna-pinto_2016

Donna Pinto, DCIS 411

I hope every woman diagnosed with low-risk DCIS today knows they have a great opportunity that did not exist for me (and thousands others) in the past.

I feel an incredible sense of gratitude to all the forces and people that have made the COMET Study possible — to the physicians and cancer centers who are making it available — and to the women who will participate. Thank you!

 

A 2nd Project Takes DCIS Research Global 

funded-teams-hero-1_0I’m honored, thrilled, humbled and grateful to be a part of an international team of scientists and patient advocates from the UK, the Netherlands, and the US on a 2nd paradigm-shifting research project.

 

Preventing Unnecessary logoBreast Cancer Treatment  was recently awarded 15 million pounds by Cancer Research UK’s Grand Challenge.

The goal is to identify bio-markers that can distinguish DCIS patients with a low risk of developing cancer from patients with a high risk.

jelle-wesseling_150x150In this video, Jelle Wesseling, pathologist from the Netherlands Cancer Institute, discusses the need to be able to distinguish harmless DCIS from the potentially hazardous DCIS.

This research may help spare thousands of women unnecessary treatment.

More similar studies in Europe and the UK

  1. Management of Low-risk DCIS (LORD)
  2. The LORIS Trial: Addressing Overtreatment of Ductal Carcinoma In Situ

francis-adeleSadly, just as I was getting acquainted with the work of Adele Francis (LORIS trial Principal Investigator), I learned of her sudden passing.

Although I did not know Adele personally, when I watched this video, I felt we we were kindred spirits.

So many lives have been blessed by Adele’s work and passion. May her spirit and wisdom continue to shine down upon all of us.

~ Donna Pinto, @DCIS411

“Travel Light. Live Light. Spread the Light. Be the Light.”

 

 

About dp4peace

I was born and raised in New Jersey and moved to the San Fernando Valley of Los Angeles when I was 12. I graduated with a BA in Journalism/Advertising from San Diego State University. After a short stint in magazine ad sales in LA, I was offered my dream job working for Club Med. I spent two years working at resorts in Mexico, The Bahamas, The Dominican Republic and Colorado. My husband Glenn & I met while working at Club Med in Ixtapa, Mexico. We returned to "real life/jobs" for three years before we embarked on a two year honeymoon around the world. Together we wrote a book called "When The Travel Bug Bites: Creative Ways to Earn, Save and Stay Abroad." I am also the author of "Cheatnotes on Life: Lessons From The Classroom of Life," a quote book for new graduates. Glenn & I live in San Diego with our two boys: Skyler, the yogi and Cody, the buddha! I enjoy running, yoga and working on projects that bring more peace, health and light to our world.
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10 Responses to Aggressive Treatments for DCIS — or NOT? New Research Sheds Light

  1. claire says:

    What is “low-risk” DCIS? Is this DCIS with a low oncotype score?

    Like

  2. informedconsent2014 says:

    This is so amazing! Donna, you continue to be a guiding light to all of us who want to see progress made in the area of overtreatment of DCIS. Hopefully with these studies underway, we can finally have solid medical data to support our decisions when it comes to treatment and screening – data that we can actually bring to our personal physicians which will carry weight and be respected. Bless you and bless all of the dedicated doctors and researchers who are looking for real answers to combat the misplaced emotionalism (and lack of science) that many patients with DCIS have endured for far too long!.

    Liked by 1 person

  3. Great job, Donna! I’m excited to be part of the team with you on the COMET and CRUK Grand Challenge studies. And if others are interested, SHARE is holding a DCIS webinar on March 22 at noon Eastern Time. http://linkis.com/org/cpAI3 We’ll talk about these very things!

    Like

  4. Reblogged this on One Health of a Life and commented:
    Another good post about some of the new DCIS research that should give us better answers! If you want more information about DCIS, please join us at the SHARE DCIS webinar on 3/22/17 at noon Eastern: bit.ly/2hRYj8H

    Like

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