“88% of DCIS is Overtreated.” — A Breast Surgeon Explains the Evidence
Over 60,000 woman every year are diagnosed with non-invasive Ductal Carcinoma in Situ (DCIS) — commonly called “stage zero” breast cancer. Most are rushed into surgery, radiation & drugs. Most are not informed about overdiagnosis & overtreatment. DCIS 411 amplifies research educating women to make more informed decisions. Listen to this 1 minute clip explaining […]
CheatSheet — Stay Healthy & Avoid DCIS (“Stage Zero Breast Cancer”) Overdiagnosis & Overtreatment
Every year I give a personal update and I try to simplify information based on the latest research, technology, and common sense! Think of the image above like a CheatSheet. It’s a one-page summary of 16 years of insights, endless hours of research, hundreds of blog posts, nutrition studies/certification, and nonprofit advocacy! To access links, […]
DCIS — New BMJ Study Supports Active Monitoring
A new study published in the British Medical Journal (BMJ) July 2025, adds to growing evidence that many women with a DCIS diagnosis may want to consider an active monitoring approach.
Presidential Proclamation on Healthy Life Habits for Cancer Prevention
An official Presidential Proclamation declaring April 2024 as the inaugural National Cancer Prevention and Early Detection Month states: “Healthy life habits — like maintaining a healthy body weight and reducing exposure to tobacco smoke — can prevent certain cancers, so we are working to help all Americans get and stay healthy. Our National Strategy on Hunger, Nutrition, […]
Lumpectomy’s Little Secret: Women Uninformed about High Re-Excision Rates & Mastectomies for DCIS
Women are often told lumpectomy is an easy surgery. One and done. Yet… more often than not, this is NOT the case. In fact, studies report up to 70% of the time, a 2nd surgery is needed due to “positive margins” for DCIS. It happened to me in 2011. After a DCIS diagnosis in January […]
On a Mission to Help Women Avoid Harms of Mammography Screening — Donna Pinto Shares Her Story with Dr. Jenn Simmons — Breast Surgeon Turned Functional Medicine Doctor
Thanks to Dr. Jenn Simmons for inviting me on her podcast. My story is one story among tens of thousands of women harmed every year. Please watch this video and share with your women friends and family… You can also listen via podcast here. When we know better, we do better. #BeW I S E is a […]
DCIS is NOT Breast Cancer — An Online Support Group Leading a Paradigm Shift
A paradigm shift is defined as “an important change that happens when the usual way of thinking about or doing something is replaced by a new and different way.”
DCIS – Is Not Breast Cancer! — an online support group created in 2020 — has quickly attracted over 1.5k women with approximately 25 new requests to join each week.
Awesome Interview!! Inspiration for DCIS 411 — Informed Choices and Healthy Living Over Fear Fear Fear!
Cynthia Toussant and I discuss how we KNEW IN OUR GUT something wasn’t right with the immediate rush to surgically remove DCIS!
“When is Cancer Not Really Cancer?” — Update from PRECISION (PREvent ductal Carcinoma In Situ Invasive Overtreatment Now)
“PRECISION aims to enable patients and clinicians to make informed, biology-based decisions to avoid unnecessary and burdensome treatment of indolent DCIS. The answer can only be found by synergistic collaboration between leading scientists, clinicians and patient advocates. There is a wide spectrum of DCIS ranging from low to high risk. “Low-risk” means it is more […]
DCIS & Cryoablation? Guest Blog
My Croablation Journey by Christine B. I was diagnosed with DCIS stage 0 grade 2 June 2017. I was immediately turned over to a surgeon who strongly suggested a lumpectomy, radiation, and a hormone blocker. Better yet a mastectomy due to my small breasts. I had never heard of DCIS until I was diagnosed! So […]
The Value of Recording Physician Consultations
Recording consultations with physicians is extremely valuable, especially with regards to obtaining results of screening or diagnostic tests, biopsies, surgeries, or discussions about future cancer risks, or potential treatments. Recording the consultation enables: ability to glean important information missed or not comprehended due to information overload, shock, language or hearing issues, etc. ability to share […]
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 30 — NO “Survival” Benefit of Aggressive Treatments for DCIS — Women Not Informed
Did you know… Women diagnosed with DCIS, also known as “stage ZERO” breast cancer, are often rushed into extremely aggressive treatments (surgery, radiation and drugs) that actually have no survival benefit… yet this information is often not told to them. Instead women are given confusing “risk reduction” statistics with each of the “standard of care” […]
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 28 — Risks of Sentinel Lymph Node Biopsy! New Study Shows NO Benefit for DCIS
Did you know… Despite experts not recommending sentinel lymph node biopsies, between 17% and 40% of women with DCIS currently undergo this unnecessary procedure that comes with serious side effects. Risks of sentinel lymph node biopsies: Pain, wound infection, and lymphedema, a painful condition that can restrict a woman’s arm movements. Patient advocate Ann Fonfa, […]
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 27 — Grade “F” in DCIS Communication
Did you know… Some health-care providers get an “F” in communication. Celebrity chef Sandra Lee said her doctors told her DCIS was a “ticking time bomb.” In January, 2010, when I brought an article, Take Carcinoma Out of DCIS and Ease Off Treatment, to show a breast surgeon about my preference for “active surveillance” of […]
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 25 — Unbiased 2nd PATHOLOGY opinion is a MUST
Did you know… Aggressive treatments for DCIS are based on pathology — and 25% may be wrong. This happened to me. I had several opinions and 3 different pathology reports. My gut told me something was not right and I needed to keep investigating. Luckily I was referred to expert pathologist, Dr. Michael Lagios. He […]
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 24 — The Word “Cancer” is Scary & Misleading for DCIS
Did you know… Several breast cancer experts over the last 10+ years have questioned whether the word “carcinoma” should be removed from DCIS (Ductal Carcinoma in Situ). “Because of the noninvasive nature of DCIS, coupled with its favorable prognosis, strong consideration should be given to remove the anxiety-producing term “carcinoma” from the description of DCIS.” […]
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 13 — Autopsy Studies Find High % of DCIS
Did you know… A review of autopsy records showed that somewhere between 9% and 15% of women have undetected DCIS at death (Welch, 1997). This supports the idea that a proportion of DCIS occurrences will not progress into invasive cancer or become life-threatening. National Breast Cancer Coalition Conclusion: “Our systematic review in ten countries over […]
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 10 — UNACCEPTABLE Rates of Failed Surgeries & When to Say “NO MORE”
Did you know… The percentage of women who need a 2nd or 3rd surgery after a lumpectomy, (also called breast conserving surgery (BCS) or partial mastectomy) is alarmingly high — especially for DCIS (stage ZERO breast cancer). One study showed 48% to 59%. I wrote The Insanity of DCIS Surgery after a 2nd surgery in Oct […]
31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 6 — Pinkwashing 101
Did you know… The definition of Pinkwasher: A company or organization that claims to care about breast cancer by promoting a pink ribbon product, but at the same time produces, manufactures and/or sells products that are linked to the disease. Breast Cancer Action, coined the term pinkwashing and created a Think Before You Pink® campaign. […]
The Importance of Being Informed, Treated with Compassion, and Advocating for Active Surveillance — Nancy Riopel’s Enlightening DCIS Story
“Please, if you take one thing from my experience, consider the importance of being informed and being willing to advocate for the treatment options that you feel are best for you. I am not DCIS, I am not a ‘tumor’ and I am not just a ‘patient’. I am a mother, a daughter, a sister, […]
A New Bio-marker Test for DCIS = Peace of Mind for Thousands of Women
If you are one of the 60,000 + women diagnosed with DCIS this year, you now have a way to gain more peace of mind about what to think and do about it. A company called PreludeDx has scientifically validated a bio-marker test which evaluates a woman’s breast tissue sample and provides a “personalized” risk […]
Keeping Patient Perspectives at the Forefront of DCIS Research
Patient Advocates from across the US and around the world came together to share insights about DCIS at the 2017 San Antonio Breast Cancer Symposium. The COMET Study Patient Leadership Team presented “Changing the DCIS Conversation: Development of an Alternative Discourse by Patient Advocate Stakeholders in the COMET Study.” Advocates from the US, UK and the Netherlands […]
Active Surveillance P L U S (Proactive – Lifestyle – Understanding – Support) — Donna’s Vision
“Active surveillance” of a “potential cancerous condition” through periodic medical imaging in itself can be extremely stressful — and the anxiety, worry, and fear of cancer developing or progressing may not go away as time goes on. Active Surveillance P L U S is my vision. It is a holistic approach to cancer prevention, […]
Aggressive Treatments for DCIS — or NOT? New Research Sheds Light
I hope every woman diagnosed with low-risk DCIS today knows they have a great opportunity that did not exist for me (and thousands others) in the past.
I feel an incredible sense of gratitude to all the forces and people that have made the COMET Study possible — to the physicians and cancer centers who are making it available — and to the women who will participate. Thank you!
DCIS Over-treatment Makes Mainstream News — 2015 Highlights
The media madness began in August 2015 following the publication of the most extensive study to date on DCIS in the prestigious medical Journal JAMA Oncology. The study of over 100,000 women concluded there was no “life-saving” benefit to “standard protocol” for DCIS (surgery, radiation and drugs). “The analysis reinforces a growing belief that current treatment […]
DCIS is NOT Cancer!
“DCIS is not cancer, so why are we calling it cancer and always treating it like it is cancer?” These are the words of Dr. Laura Esserman, Director of the Carol Franc Buck Breast Care Center at the University of California, San Francisco. She posed this question while speaking at the Australian Breast Cancer Conference […]