Donna’s 9 Year Update — Top 3 Questions, Lessons Learned, and 2019 Projects

Pinto Family_Nov 2017

2019

Aug 2010_Ross wedding

2010

If not for photos with my children…

I would not believe it’s been nine years since my journey with DCIS began.

question mark redTOP 3 QUESTIONS I AM OFTEN ASKED

1. Did I ever have a recurrence of DCIS or invasive cancer?   

NO!

Donna’s Journey starting at Part 2June 2011 details my experience with “residual” low grade DCIS. This was explained to me here: Listen to My Phone Consultation with Dr. Michael Lagios.

see-it2.  What do I do for follow-up imaging ?

See my post: Bye-Bye Mammograms: Hello SonoCiné Ultrasound

bodymindspiritsoul3.  What diet and lifestyle did I initially follow?

Everything is listed in Holistic Health

TOP 3 LESSONS LEARNED

  1. Cheatnotes on DCISTrust your intuition.
  2. One size does not fit all.
  3. Support is vital.

BeWiseGraphicMY 2019 PASSION PROJECT

#Be WISE — Women Informed Supported Empowered — is an educational campaign to counterbalance misperceptions, confusion, and fears around “early detection” of breast cancer and DCIS.

MY WORK AS A PATIENT ADVOCATE

I am headed to London this week for Cancer Research UK’s Grand Challenge 2nd Annual Summit bringing together seven funded teams — one of which is PRECISION (PREvent ductal Carcinoma In Situ Invasive Overtreatment Now). Here is a short video about PRECISION:

It is truly an honor to work with physicians, researchers, and patient advocates from around the world on two major research projects — COMET and PRECISION — dedicated to solving the DCIS dilemma.

thumbnailprecision team london 2018

WHY THIS RESEARCH IS NEEDED

The over-treatment controversy made mainstream news in 2015 after results from a large study showed “no survival benefit” for treating DCIS with surgery. Good Morning America featured a powerful segment — ‘Stage Zero’ Breast Cancer: New Study Casts Doubt on Early Intervention.

KPBS_TV_Aug 24_2015I was invited on KPBS to share my story along with a medical oncologist.

Dr. Reema Batra stated, “Clinical practice would not change — until there is evidence from a randomized prospective clinical trial which compares the usual treatment (immediate surgery) to active surveillance.”

Without a study of this nature, Dr. Batra said she would continue to recommend the same aggressive treatments for all women diagnosed with DCIS.

GRATEFUL FOR MAJOR MEDIA…

Is Stage Zero Breast Cancer Really Cancer? Women Share Their Doubts

 

Is Stage Zero breast cancer really cancer? 7 ON YOUR SIDE investigates the controversy

womens-health‘Why I Refused to Get Treatment When I Was Diagnosed

 

 

#Be WELL #Be WISE!

 

 

About dp4peace

I was born and raised in New Jersey and moved to the San Fernando Valley of Los Angeles when I was 12. I graduated with a BA in Journalism/Advertising from San Diego State University. After a short stint in magazine ad sales in LA, I was offered my dream job working for Club Med. I spent two years working at resorts in Mexico, The Bahamas, The Dominican Republic and Colorado. My husband Glenn & I met while working at Club Med in Ixtapa, Mexico. We returned to "real life/jobs" for three years before we embarked on a two year honeymoon around the world. Together we wrote a book called "When The Travel Bug Bites: Creative Ways to Earn, Save and Stay Abroad." I am also the author of "Cheatnotes on Life: Lessons From The Classroom of Life," a quote book for new graduates. Glenn & I live in San Diego with our two boys: Skyler, the Yogi and Cody, the Buddha! I enjoy running, yoga and working on projects that bring more peace, health and light to our world.
This entry was posted in Health, Options, Personal Stories, Research, Resources, Sanity, Support and tagged , , , , , , , , , . Bookmark the permalink.

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