#Be W I S E

Beyond Awareness

#Women Informed Supported Empowered

#BeW I S E is a campaign to help women get “beyond awareness.”

It provides essential information women need to know before making decisions to be screened for breast cancer.

#BeW I S E topics include:

  • Risk of breast cancer
  • Mammography Pros and Cons
  • Overdiagnosis & Overtreatment
  • DCIS (Stage Zero Breast Cancer)
  • Options for Breast Imaging
  • Reducing Risk of Breast Cancer

#BeW I S E About Actual Risk of Breast Cancer

Many women are uninformed and confused.

Women’s perceptions do not match scientific data.

Statistics can be misleading.

Women may hear…

“Regular mammograms reduce breast cancer deaths by 20%.”

Sounds pretty good…but how many lives do they really save?

Only 1 in 1,000!

Here is an excellent short video explaining this:

#BeW I S E About Potential Harms of Screening Mammography

Having a mammogram — or not — should be a personal decision based on balanced, unbiased information which weighs both the benefits and harms. No one should ever feel pressured, intimidated, bullied or shamed for choosing NOT to have a mammogram.

Yet health-care providers, charities, celebrities, and the media are constantly telling, reminding, persuading, and even brainwashing women into getting  mammograms.

How can women make a truly informed decision?

This is the mission of #BeW I S E

Should I Get a Mammogram? explains overdiagnosis, overtreatment, false positives, and false negatives.

Thanks to Dr. Joann Elmore,  director of the UCLA National Clinician Scholars Program and #AdamRuinsEverything for a humorous video about a not-so-funny topic.

“Turns out, mammograms save fewer lives than you think…”

Why is this such a complicated, often debated topic? Dr. Michael Gregor has made a series of 14 videos  explaining the pros and cons of mammography. Women need to take the time to understand this. Here is one of the videos:

Dr. Pam Popper also posted a video about the importance of women being properly informed about mammograms, breast cancer and DCIS:

#BeW I S E About DCIS — “Stage Zero” breast cancer

“DCIS is a prime example of potential overtreatment. DCIS is usually treated similar to invasive breast cancer with surgery, radiation and hormone-blocking medicines.

microscopeDespite newer research concluding these interventions provide no difference in survival, aggressive ‘cancer’ treatments remain the ‘standard of care,’ and many women world-wide are faced with the life-long emotional, physical and financial consequences of aggressive treatments.

Estimates suggest that mammographic screening has resulted in overdiagnosis and overtreatment in over 1 million women in the United States in the past 30 years. The majority of this is due to the overtreatment of DCIS.” – PRECISION (PREvent ductal Carcinoma In Situ Invasive Overtreatment Now), an international research project funded by Cancer Research UK

Dr. Michael Gregor explains Overtreatment of DCIS:

Culture of Fear Needs a Paradigm Shift

“There’s a hysteria around breast cancer. The extremism that sometimes comes into play in DCIS treatment decision making is a ‘cultural problem.’ This is not a life-threatening problem.”   –Dr. Anne Partridge, MD, MPH, Dana-Farber Cancer Institute

“Because of the noninvasive nature of DCIS, coupled with its favorable prognosis, strong consideration should be given to remove the anxiety-producing term “carcinoma” from the description of DCIS.”   – National Institutes of Health, State of the Science, 2009

Dr. Susan Love sheds light on DCIS:

#Be W I S E Facts about DCIS

  • DCIS stands for Ductal Carcinoma in Situ
  • It is non-invasive “pre-cancerous” cells
  • Mainly found on screening mammograms
  • Affects 60,000+ women annually world-wide
  • Most have no signs or symptoms
  • By 2020 more than 1 million living U.S. women estimated to have a DCIS diagnosis
  • “Standard of care” treatments are aggressive — similar to invasive breast cancer

#Be W I S E If Diagnosed with DCIS

  • Take time to gather information.
  • Get a 2nd Pathology Opinion
  • Know your risk — DCISionRT is a new bio-marker test to determine risk level
  • If “low-risk,” consider a clinical trial comparing active surveillance to surgery: COMET (US)  LORIS (UK)  LORD (Netherlands)
  • Watch video of Dr. Shelley Hwang and Patient Advocate Donna Pinto:

question mark red

#BeWISE About Options for Breast Imaging

#BeWISE About Reducing Risk of Breast Cancer

#Be W I S E and Stay Connected

DCIS 411 Founder Donna Pinto shares her story:

INSIDE EDITION

Is Stage Zero Breast Cancer Really Cancer? Women Share Their Doubts

Please share #BeW I S E with women you care about!

Sponsors, partners, supporters, advocates, mentors, donors, media welcome!

Please Get involved!

Contact: donna@dcis411.com

Thank you!!

 

 

 

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