#Women Informed Supported Empowered
Conflicts of interest and well-funded marketing campaigns have created an imbalance of information — promoting a one-sided story of benefits while ignoring or downplaying harms.
Inspired by thousands of women’s personal experiences and shocking discoveries following a diagnosis of DCIS, also known as “Stage Zero” Breast Cancer, #BeWISE seeks to spare thousands of women world-wide annually from harm due to being uninformed or misinformed.
Most women have never heard of breast cancer over-diagnosis and over-treatment.
#BeWISE utilizes videos and info-graphics to break down real science into simple, no-nonsense chunks.
Women are encouraged to become their own best health-care advocates by being well-informed on the following topics:
- Actual vs. Perceived Risk of Breast Cancer
- Potential Harms of Screening Mammography
- Overdiagnosis & Overtreatment
- DCIS (Stage Zero Breast Cancer)
- Options for Breast Imaging
- Nutrition & Lifestyle Risk Reduction/Prevention Strategies
Actual vs Perceived Risk of Breast Cancer
Women may hear…
“Regular mammograms reduce breast cancer deaths by 20%.”
Sounds pretty good…but how many lives do they really save?
Only 1 in 1,000!
Here is an excellent short video explaining this:
Potential Harms of Screening Mammography
Having a mammogram — or not — should be a personal decision based on balanced, unbiased information which weighs both the benefits and harms. No one should ever feel pressured, intimidated, bullied or shamed for choosing NOT to have a mammogram.
Yet health-care providers, charities, celebrities, and the media are constantly reminding, persuading, encouraging, and even brainwashing women into getting mammograms.
How can women make a truly informed decision?
This is the mission of #BeW I S E
Should I Get a Mammogram? is an online brochure explaining overdiagnosis, overtreatment, false positives, and false negatives.
“Turns out, mammograms save fewer lives than you think…”
Why is this such a complicated, often debated topic? Dr. Michael Gregor has made a series of 14 videos explaining the pros and cons of mammography. Women need to take the time to understand this. Here is one of the videos:
Dr. Pam Popper also posted a video about the importance of women being properly informed about mammograms, breast cancer and DCIS:
DCIS — “Stage Zero” Breast Cancer
“DCIS is a prime example of potential overtreatment. DCIS is usually treated similar to invasive breast cancer with surgery, radiation and hormone-blocking medicines.
Despite newer research concluding these interventions provide no difference in survival, aggressive ‘cancer’ treatments remain the ‘standard of care,’ and many women world-wide are faced with the life-long emotional, physical and financial consequences of aggressive treatments.
Estimates suggest that mammographic screening has resulted in overdiagnosis and overtreatment in over 1 million women in the United States in the past 30 years. The majority of this is due to the overtreatment of DCIS.” – PRECISION (PREvent ductal Carcinoma In Situ Invasive Overtreatment Now), an international research project funded by Cancer Research UK
Dr. Michael Gregor explains Overtreatment of DCIS:
Culture of Fear Needs a Paradigm Shift
“There’s a hysteria around breast cancer. The extremism that sometimes comes into play in DCIS treatment decision making is a ‘cultural problem.’ This is not a life-threatening problem.” –– Dr. Anne Partridge, MD, MPH, Dana-Farber Cancer Institute
“Because of the noninvasive nature of DCIS, coupled with its favorable prognosis, strong consideration should be given to remove the anxiety-producing term “carcinoma” from the description of DCIS.” – National Institutes of Health, State of the Science, 2009
Dr. Susan Love sheds light on DCIS:
Facts about DCIS:
- DCIS stands for Ductal Carcinoma in Situ
- It is non-invasive “pre-cancerous” cells
- Mainly found on screening mammograms
- Affects 60,000+ women annually world-wide
- Most have no signs or symptoms
- By 2020 more than 1 million living U.S. women estimated to have a DCIS diagnosis
- “Standard of care” treatments are aggressive — similar to invasive breast cancer
If Diagnosed with DCIS:
- Take time to gather information.
- Get a 2nd Pathology Opinion
- Know your risk — DCISionRT is a new bio-marker test to determine risk level
- If “low-risk,” consider a clinical trial comparing active surveillance to surgery: COMET (US) LORIS (UK) LORD (Netherlands)
- Watch video of Dr. Shelley Hwang and Patient Advocate Donna Pinto:
Options for Breast Imaging
- Learn about breast density — one of the strongest predictors of the failure of mammography screening to detect cancer. Visit Are You Dense?
- Review studies on Mammograms, Ultrasound, MRI and Thermography: Imaging and Monitoring
Nutrition & Lifestyle Risk Reduction/Prevention Strategies
- Prevention/Risk Reduction, Dr. Susan Love Research Foundation
- Nutrition & Lifestyle, Dr. Deanna Attai
- Food for Life Cancer Project, Physicians Committee for Responsible Medicine
- Proactive Breast Health Club, DCIS Redefined: Dilemmas, Choices & Integrative Solutions
#Be W I S E and Stay Connected
- DCIS 411 — “Follow” for email alerts with new posts
- DCIS Integrative Support & Empowerment “Join” Facebook Group
- Use #BeWISE in social media posts
DCIS 411 Founder Donna Pinto shares her story:
Sponsors, partners, supporters, advocates, mentors, donors, media welcome!
Please Get involved!
Please consider making a donation! Even small contributions will go a long way in supporting this campaign to educate millions of women world-wide. Click here to DONATE — Thank you!!!
Please share #BeW I S E with women you care about! Thank You!!