Category Archives: Research

“It’s a Way of Living” — Donna’s Checklist

Grateful for the interview today with Deb Hackenberry, facilitator of SHARE’s DCIS online support group… Deb: “If there was one thing you would want women to take away from your DCIS experience and 10+ years of research, what would that … Continue reading

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DCIS Over-Diagnosis & Over-Treatment: New Facebook Group

Patients, researchers, advocates, journalists and organizations need to work together to understand and communicate better about this serious women’s health issue! Please join a new Facebook Group: DCIS Over-diagnosis and Over-treatment A forum for information, discussion, support, research, education, awareness … Continue reading

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Breast Cancer “Overdiagnosis” Study Seeks Women for Interviews

Fact Sheet: What is Breast Cancer Overdiagnosis? Our team at the Sydney School of Public Health, Australia, is carrying out a research study to explore women’s awareness of the term ‘overdiagnosis’. We are interested in talking with women anywhere in … Continue reading

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 31 — Trick or Truth?

“Galileo’s head was on the block. His crime was looking up the truth.” – Indigo Girls Did you know… Clever TRICKS are used to manipulate the TRUTH about mammography screening. The TRICKS are explained in a Time Magazine article, This … Continue reading

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 30 — NO “Survival” Benefit of Aggressive Treatments for DCIS — Women Not Informed

Did you know… Women diagnosed with DCIS, also known as “stage ZERO” breast cancer, are often rushed into extremely aggressive treatments (surgery, radiation and drugs) that actually have no survival benefit… yet this information is often not told to them. … Continue reading

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 28 — Risks of Sentinel Lymph Node Biopsy! New Study Shows NO Benefit for DCIS

Did you know… Despite experts not recommending sentinel lymph node biopsies, between 17% and 40% of women with DCIS currently undergo this unnecessary procedure that comes with serious side effects. Risks of sentinel lymph node biopsies: Pain, wound infection, and … Continue reading

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 25 — Unbiased 2nd PATHOLOGY opinion is a MUST

Did you know… Aggressive treatments for DCIS are based on pathology — and 25% may be wrong. This happened to me. I had several opinions and 3 different pathology reports. My gut told me something was not right and I … Continue reading

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 24 — The Word “Cancer” is Scary & Misleading for DCIS

Did you know… Several breast cancer experts over the last 10+ years have questioned whether the word “carcinoma” should be removed from DCIS (Ductal Carcinoma in Situ). “Because of the noninvasive nature of DCIS, coupled with its favorable prognosis, strong … Continue reading

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 23 — Double Mastectomies for DCIS?

Did you know… “Many women who have DCIS are choosing not to just to get a mastectomy, but to get a bilateral mastectomy and have both breasts removed.” – Otis Brawley, NPR “More women with ductal carcinoma in situ (DCIS) … Continue reading

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 22 — Screening Doesn’t Save Lives

Did you know… Professor Peter C Gøtzsche shared on Twitter today: “Pink month lies: “Early detection saves lives and breasts.” It doesn’t, and because of overdiagnosis you will reduce your risk of becoming a breast cancer patient by one-third if … Continue reading

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