Category Archives: Support

“It’s a Way of Living” — Donna’s Checklist

Grateful for the interview today with Deb Hackenberry, facilitator of SHARE’s DCIS online support group… Deb: “If there was one thing you would want women to take away from your DCIS experience and 10+ years of research, what would that … Continue reading

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DCIS Over-Diagnosis & Over-Treatment: New Facebook Group

Patients, researchers, advocates, journalists and organizations need to work together to understand and communicate better about this serious women’s health issue! Please join a new Facebook Group: DCIS Over-diagnosis and Over-treatment A forum for information, discussion, support, research, education, awareness … Continue reading

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 17 — Radical Remission

Did you know… Over 1500 cases of “radical remission” have been analyzed and documented by Dr. Kelly Turner, author of New York Times bestseller, Radical Remission: Surviving Cancer Against All Odds. “Radical remission” is a term that refers to remission … Continue reading

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 11 — It’s Ok to Opt Out of Mammograms

Did you know… It’s Ok to Opt Out of Mammograms. In this must-read article, science writer, Christie Aschwanden lists key points (see below) of some of the “little known” harms of screening. She encourages women to review a chart on … Continue reading

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 10 — UNACCEPTABLE Rates of Failed Surgeries & When to Say “NO MORE”

Did you know… The percentage of women who need a 2nd or 3rd surgery after a lumpectomy, (also called breast conserving surgery (BCS) or partial mastectomy) is alarmingly high — especially for DCIS (stage ZERO breast cancer).  One study showed … Continue reading

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The Importance of Being Informed, Treated with Compassion, and Advocating for Active Surveillance — Nancy Riopel’s Enlightening DCIS Story

“Please, if you take one thing from my experience, consider the importance of being informed and being willing to advocate for the treatment options that you feel are best for you. I am not DCIS, I am not a ‘tumor’ … Continue reading

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DCIS Support — Find Your Tribe on Facebook!

There are five distinctly different “DCIS support groups” on Facebook. Some have strict rules. Differing viewpoints have led to heated debates and frustrations. Hopefully everyone can find a support tribe they most align with. Some may feel they benefit from … Continue reading

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Donna’s 9 Year Update — Top 3 Questions, Lessons Learned, and 2019 Projects

If not for photos with my children… I would not believe it’s been nine years since my journey with DCIS began. TOP 3 QUESTIONS I AM OFTEN ASKED 1. Did I ever have a recurrence of DCIS or invasive cancer? … Continue reading

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Thankful for PCORI & Patient-Centered Research

I recently had the opportunity to attend the annual meeting of  PCORI — Patient-Centered Outcomes Research Institute. Three days of presentations and panel discussions all focused on one recurring theme: Patient voices, preferences, values, experiences, and outcomes matter. I felt … Continue reading

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What is “Low-risk” DCIS & Why is The COMET Study Urgently Needed?

The COMET Study is the nation’s first prospective, randomized clinical trial aimed at resolving an ongoing debate about the best way to manage “low-risk” DCIS (Ductal Carcinoma In Situ), also known as “stage zero” breast cancer. “This is a trial … Continue reading

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