Category Archives: Health

DCIS Wellness Retreat

I am excited to host the “first ever” DCIS Wellness Retreat! If you have had DCIS — and you have felt supported or inspired by DCIS 411 and/or DCIS Integrative Support and Empowerment group — you’re invited. † This retreat … Continue reading

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DCIS Support — Find Your Tribe on Facebook!

There are five distinctly different “DCIS support groups” on Facebook. Some have strict rules. Differing viewpoints have led to heated debates and frustrations. Hopefully everyone can find a support tribe they most align with. Some may feel they benefit from … Continue reading

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NO Informed Consent — Harmed by 5 Titanium Clips in Breast — DCIS Patient Shares Her Story and Advocacy

by Lisa Nash (Presented at the State House in Boston to Senators and legislative staff): Hello, my name is Lisa Nash and I am here to speak with you about An Act Promoting Patient Engagement in Health Care Decisions. I … Continue reading

Posted in Health, Personal Stories | 9 Comments

Donna’s 9 Year Update — Top 3 Questions, Lessons Learned, and 2019 Projects

If not for photos with my children… I would not believe it’s been nine years since my journey with DCIS began. TOP 3 QUESTIONS I AM OFTEN ASKED 1. Did I ever have a recurrence of DCIS or invasive cancer? … Continue reading

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Thankful for PCORI & Patient-Centered Research

I recently had the opportunity to attend the annual meeting of  PCORI — Patient-Centered Outcomes Research Institute. Three days of presentations and panel discussions all focused on one recurring theme: Patient voices, preferences, values, experiences, and outcomes matter. I felt … Continue reading

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What is “Low-risk” DCIS & Why is The COMET Study Urgently Needed?

The COMET Study is the nation’s first prospective, randomized clinical trial aimed at resolving an ongoing debate about the best way to manage “low-risk” DCIS (Ductal Carcinoma In Situ), also known as “stage zero” breast cancer. “This is a trial … Continue reading

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A New Bio-marker Test for DCIS = Peace of Mind for Thousands of Women

If you are one of the 60,000 + women diagnosed with DCIS this year, you now have a way to gain more peace of mind about what to think and do about it. A company called PreludeDx has scientifically validated … Continue reading

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