Esserman & Hwang: TIME’s Top 100 — (And My Top 10!)

Highlights-Esserman-Hwang-TIME100-Blog-270x85What a major milestone this is!

Laura Esserman and Shelley Hwang — named to the 2016 TIME 100 Most Influential People in the World!

Why are These Doctors in My Top 10?

From the day I received a DCIS diagnosis and I was told of the very drastic and aggressive treatments, I began to investigate what intuitively felt seriously wrong. I was scared, confused and overwhelmed, but thankfully I soon discovered two breast surgeons leading a “controversial” call for change and discussing the problem of “over-treatment” of DCIS.

Laura Esserman and  Shelley Hwang became my heroes.  They were both boldly taking a stance — challenging the medical status quo when it came to DCIS and calling for radical change. I have been following and promoting their important messages for over six years.

Up until recently the mainstream media didn’t pay much attention to them. Celebrities with DCIS choosing double mastectomies made headline news while the over-treatment issue — potentially harming thousands of women every year — continued under the radar of the major media.

Then in August 2015, the largest study ever on DCIS concluded there was no difference in survival between DCIS treatments. Almost overnight Esserman and Hwang began to get the attention and recognition they deserved. Even I was featured in several major news segments! Click here to see all the exciting media hoopla.

The Inspiration to Create DCIS 411

One of the biggest reasons I felt compelled to create DCIS 411 was to share Esserman and Hwang’s published statements that I had been collecting for nearly two years.

I discovered their controversial wisdom soon after receiving the shocking blow that sent me scrambling to the internet in January 2010. Esserman and Hwang gave me my sanity back. I felt completely validated and reassured that I was not crazy for choosing to forego drastic and alarming “standard of care” treatment protocols my doctors in San Diego were urging me to do. I found a sense of peace and confidence knowing breast cancer experts believed as I did — only they had years of clinical experience and scientific research to back up what was just a strong gut feeling for me.

While I felt blessed and overjoyed every time I found an article quoting these experts, I knew most women probably did not have the time to research this topic as I had.

I felt strongly that every newly diagnosed woman deserved to know what these highly credible breast surgeons were stating. The problem, however, is all too often, women are rushed ahead with surgeries and radiation before they have a chance to blink. And even if they did find an article or two and they brought these out-of-the-box perspectives to their doctors, most surgeons and oncologists would likely not support them — or worse — scare them that DCIS was a “ticking time bomb.”

It sickened me to know that over 60,000 women a year might be missing a crucial message that could potentially save them from losing their breasts or sparing them from weeks of radiation.

Not Everyone Felt As I Did

When I first stumbled upon Esserman and Hwang’s bold viewpoints, I felt elated. I thought it would be a no-brainer for doctors and women to join the “less is more” bandwagon. To my astonishment, I was wrong. Resistance and even belittling from medical professionals and patients alike was what I experienced. Doctors quickly dismissed the topic of active surveillance as “too controversial” and “too risky.” My doctor actually said to me, “Don’t be stupid Donna.”

Even worse was the response from patients chatting in online DCIS support forums. When I shared links to articles discussing active surveillance and my choice to forego the standard of care aggressive protocol, a heated debate would often ensue. There were many naysayers and some were down-right mean. Many women argued — “DCIS IS CANCER” — and told me I was being foolish and irresponsible.

I quickly grew tired and frustrated hearing worst-case scenarios and statistics of bad outcomes. After being told NOT to “promote” my new DCIS 411 website by moderators in an online DCIS forum, I signed off for good. All I wanted was to help women find support, valuable resources and peace of mind if they were like me — seeking options to a fear-driven urgency to undergo potentially harmful treatments with little or no benefit.

How Sweet It Is — Making a Positive Difference 

Today, much has shifted for the better thanks to Laura Esserman and Shelley Hwang.

Thanks TIME Magazine and Melissa Etheridge for honoring them. You just made the mission of DCIS 411 and DCIS Redefined a whole lot easier.

See 2016 TIME 100, “Breast-Cancer Doctors Who Dare To Do Less.

Stay Tuned… 

Be sure to to stay updated on both Esserman and Hwang’s important studies by “following” DCIS 411 here and on Facebook.

See Patient-Centered Outcomes Research Institute for more information on their latest studies.

About Donna Pinto

I am originally from New Jersey and moved to Los Angeles with my family at age 12. After graduating from San Diego State University with a BA in Journalism, I had a short-stint in magazine advertising sales before landing my "dream job" with Club Med. For two years I worked at resorts in Mexico, The Bahamas, The Dominican Republic and Colorado. My husband Glenn & I met in Ixtapa, Mexico and we embarked on a two year honeymoon around the world. This was also a research project for a book we wrote called "When The Travel Bug Bites: Creative Ways to Earn, Save and Stay Abroad." I am also the author of a quote book for new graduates -- "Cheatnotes on Life: Lessons From The Classroom of Life." In 1997, we settled in San Diego and I was blessed to work part-time from home for non-profit organizations while raising our two boys. In 2010, a DCIS diagnosis changed my life. DCIS 411 is the culmination of my on-going journey and discoveries.
This entry was posted in Health, Options, Personal Stories, Resources, Sanity, Support. Bookmark the permalink.

6 Responses to Esserman & Hwang: TIME’s Top 100 — (And My Top 10!)

  1. Ellen Berman says:

    The individual with DCIS must take control of her own body and not listen to the first, second or third surgeon who tells you that you have cancer and you must have an immediate mastectomy. This is so true and is exactly my story. And while I applaud these progressive doctors who talk about survival rate equalities regardless of treatment, there are some caveats as regards Dr.Hwang’s approach to DCIS Grade 3. I met with her a month ago to discuss my diagnosis and, while she did not examine all of my biopsy slides, when she reviewed my images and reports she recommended mastectomy, saying there was a 60 – 80% chance my large area of high-grade DCIS (estrogen negative) indicated a microinvasion — just as all the other surgeons told me! Knowing her reputation for recommending breast conservation, and the fact that I am in a low-risk category (white, no bc in family, over 60) this shocked me. I then got another opinion from Dr. Michael Laigos in California, who at first agreed with all my surgeons to at least have a large lumpectomy. At that point I decided I needed a different tact, away from just addressing the body but focusing on the spirit. I received some direct, focused counseling at a spiritual center in Clearwater, Florida and at the end of my sessions there I got an email from Laigos saying he located 72 additional “missing” slides from lab that did my biopsy, that questioned the extensiveness of the DCIS high grade area and said the suspicious enhancements on imaging were not definitive. Woo-hoo! Then I found an Atlanta surgeon who agreed to explore further with an incisiononal/surgical biopsy of the suspicious area. She understood that I would be devastated if I had a mastectomy and the path report came out negative. Guess what? The chunk of biopsy tissue she took out was completely benign. I am convinced it was my healing of my spirit that has healed the body. I must be still monitored, of course, and my surgeon has recommended follow-up radiation — which I am refusing. So from this I advise others to address the spiritual causes of body problems, and strongly urge DCIS researchers to come up with better approaches and better options for those with high-grade DCIS in particular. I would even argue that high-grade DCIS is a different category of disease from grades 1 and 2 altogether. Curcumin and wormwood might also be helpful. I have taking that, too. Wishing a great future to all of you ladies!!!


  2. Kat says:

    ELLEN…OMG….this sounds so much like mine…..The surgery biopsy report was Inaccurate, didn’t dice the slide that needed to be examined and it was DR L. who spotted it. I sought him out because, I too, just felt uncomfortable with the initial biopsy report, just felt this is NOT right.! I had a lumpectomy and am on my way….I refused all other treatment!

    God Bless US all and especially, Dr. L!


  3. I am thrilled to see the progress in DCIS research! Although we who have chosen active surveillance are still in the minority, perhaps this will encourage others to seek other alternatives for treatment! Thank you Donna, for sharing such important groundbreaking information!


  4. informedconsent2014 says:

    It’s so fantastic and wonderful that Dr. Esserman and Dr. Hwang have been honored like this by TIME. Now if we can just get the majority of mainstream doctors and surgeons on board, we’ll start seeing some real changes at the level of the doctor/patient relationship, where ALL options need to be honored and considered, including active surveillance. And of course the fabulous work you’ve done with DCIS 411 is a part of the circle of success and enlightenment.

    I predict that the various breast cancer/ DCIS forums will one day add a new section called “active surveillance” and drop the fear tactics and name-calling that unfortunately has been a part of some of the breast cancer forums (which I, too, have experienced and decided not to subject myself to any more of their negative comments). Even though I have been recommended for biopsy since 2011 for “suspicious calcifications”, I have refused and continued to monitor the calcs. So far, there’s been very little change in their appearance, and I feel more and more vindicated every day that I didn’t rush to biopsy (and potential overtreatment). While there’s still a lot to be done in this field, headway is being made thanks to courageous ladies who took the time to do their homework and delve into this subject without fear or hysteria. And just lke you, Donna, Dr. Esserman and Dr. Hwang are definitely in MY TOP 10!!!


  5. Reblogged this on One Health of a Life and commented:
    Donna Pinto and I were in a meeting last week with other patient advocates, researchers and clinical trial staff to discuss the new DCIS COMET trial that is in development. Thanks to Shelley Hwang, Ann Partridge, Alastair Thompson, and Jennifer Gierisch for including us in the Study Leadership Team!


  6. dp4peace says:

    Thanks so much for all the wonderful comments, story-sharing and re-blogging! Health and blessings to all! 🙂 Donna


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