Radiation or NOT?

What would happen if the truth about radiation treatment got out?

Thanks to Kathi Kolb and all the commentors on her blog for sharing their real-life experiences with radiation treatment and the aftermath.


Changes will only come for DCIS/breast cancer treatment when enough women demand it!

I have been saying NO to rads for over 2 years despite the hard sell, fear tactics and claims that there is very little harm, damage, discomfort, pain and short & long-term repercussions from radiation treatment.  Most oncologists, radiologists and surgeons tout only benefits and statistics of lowering DCIS recurrence. One major point I discovered that they fail to tell us is that our chance of an invasive recurrence is actually higher.

According to  an article published in the Journal of Surgical Oncology 2007 by MELVIN J. SILVERSTEIN, MD and MICHAEL D. LAGIOS, MD entitled Should all Patients Undergoing Breast Conserving Therapy for DCIS Receive Radiation Therapy? No. One Size Does Not Fit All: An Argument Against the Routine Use of Radiation Therapy for All Patients With Ductal Carcinoma In Situ of the Breast  Who Elect Breast Conservation:

More invasive recurrences among irradiated patients: In our experience and the experience of others, the percentage of invasive recurrence after radiation therapy is greater than 50%. After excision alone, it is approximately 34%. In addition, the median time to recurrence is twice as long for the irradiated patients. If a higher percentage of recurrences among irradiated patients are invasive, this could lead to a higher mortality rate.”

Here’s another great resource/story:  “DCIS Without Rads”: https://sites.google.com/site/dciswithoutrads/home

About Donna Pinto

I was born and raised in New Jersey and moved to the San Fernando Valley of Los Angeles when I was 12. I graduated with a BA in Journalism/Advertising from San Diego State University. After a short stint in magazine ad sales in LA, I was offered my dream job working for Club Med. I spent two years working at resorts in Mexico, The Bahamas, The Dominican Republic and Colorado. My husband Glenn & I met while working at Club Med in Ixtapa, Mexico. We returned to "real life/jobs" for three years before we embarked on a two year honeymoon around the world. Together we wrote a book called "When The Travel Bug Bites: Creative Ways to Earn, Save and Stay Abroad." I am also the author of "Cheatnotes on Life: Lessons From The Classroom of Life," a quote book for new graduates. Becoming a mom changed my life and I was fortunate to work part-time from home with many amazing nonprofits. In 2010, a DCIS diagnosis inspired me to an investigation that culminated in creating DCIS 411 and Give Wellness.
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2 Responses to Radiation or NOT?

  1. Ellen Evanoff says:

    Radiofrequency Ablation. See this article:
    It seems to me that this is a great alternative to radiation. Ablation extends the disease-free zone without the side-effects of radiation.


  2. Gail says:

    Silverstein et al. did a followup to the 2007 study, in 2010: this one is even more optimistic.

    Below, the quotes from the VNPI study, 2010:
    “Current recommendations are as follows:
    Excision alone for those who score 4, or 5, or 6.
    Excision plus radiation therapy for those who score 7, 8, or 9.
    Mastectomy for those who scored 10, 11, or 12.”

    Silverstein followup, 2010:
    Figure 1, A shows 320 patients with scores of 4, 5, or 6 analyzed by treatment (excision alone vs excision plus radiation therapy). The local recurrence rate at 12 years for those who received radiation therapy was 2.5%. For those treated with excision alone, it was 5.4% (P = NS). When analyzed by individual score, those who scored 4, 5, or 6, regardless of treatment (excision alone or excision plus radiation therapy), had a local recurrence rate of 6% or less at 12 years.

    With almost three times as many patients as originally published, the USC/VNPI can be more finely tuned to aid in the treatment decision-making process. To achieve a local recurrence rate of less than 20% at 12 years, these data support excision alone for all patients scoring 4, 5, or 6 and patients who score 7 but have margin widths ≥3 mm. [That’s another thing: My margins are 30 mm.]

    Excision plus radiation therapy achieves the less than 20% local recurrence requirement at 12 years for patients who score 7 and have margins ❤ mm, patients who score 8 and have margins ≥3 mm, and for patients who score 9 and have margins ≥5 mm.



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