Tag Archives: DCIS

31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 23 — Double Mastectomies for DCIS?

Posted on October 23, 2019 by Donna Pinto

Did you know… “Many women who have DCIS are choosing not to just to get a mastectomy, but to get a bilateral mastectomy and have both breasts removed.” – Otis Brawley, NPR “More women with ductal carcinoma in situ (DCIS) … Continue reading →

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 11 — It’s Ok to Opt Out of Mammograms

Posted on October 11, 2019 by Donna Pinto

Did you know… It’s Ok to Opt Out of Mammograms. In this must-read article, science writer, Christie Aschwanden lists key points (see below) of some of the “little known” harms of screening. She encourages women to review a chart on … Continue reading →

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 10 — UNACCEPTABLE Rates of Failed Surgeries & When to Say “NO MORE”

Posted on October 10, 2019 by Donna Pinto

Did you know… The percentage of women who need a 2nd or 3rd surgery after a lumpectomy, (also called breast conserving surgery (BCS) or partial mastectomy) is alarmingly high — especially for DCIS (stage ZERO breast cancer).  One study showed … Continue reading →

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31 Days of “Little Known” FACTS — For Breast Cancer Awareness Month — Day 8 — Overdiagnosis Devastates Lives

Posted on October 8, 2019 by Donna Pinto

Did you know… Overdiagnosis of DCIS Devastates the Lives of Tens of Thousands of Healthy Women Every Year. In this country, the huge jump in D.C.I.S. diagnoses potentially transforms some 50,000 healthy people a year into “cancer survivors” and contributes … Continue reading →

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The Importance of Being Informed, Treated with Compassion, and Advocating for Active Surveillance — Nancy Riopel’s Enlightening DCIS Story

Posted on September 20, 2019 by Donna Pinto

“Please, if you take one thing from my experience, consider the importance of being informed and being willing to advocate for the treatment options that you feel are best for you. I am not DCIS, I am not a ‘tumor’ … Continue reading →

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DCIS Support — Find Your Tribe on Facebook!

Posted on June 18, 2019 by Donna Pinto

There are five distinctly different “DCIS support groups” on Facebook. Some have strict rules. Differing viewpoints have led to heated debates and frustrations. Hopefully everyone can find a support tribe they most align with. Some may feel they benefit from … Continue reading →

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Donna’s 9 Year Update — Top 3 Questions, Lessons Learned, and 2019 Projects

Posted on January 20, 2019 by Donna Pinto

If not for photos with my children… I would not believe it’s been nine years since my journey with DCIS began. TOP 3 QUESTIONS I AM OFTEN ASKED 1. Did I ever have a recurrence of DCIS or invasive cancer? … Continue reading →

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Thankful for PCORI & Patient-Centered Research

Posted on November 21, 2018 by Donna Pinto

I recently had the opportunity to attend the annual meeting of  PCORI — Patient-Centered Outcomes Research Institute. Three days of presentations and panel discussions all focused on one recurring theme: Patient voices, preferences, values, experiences, and outcomes matter. I felt … Continue reading →

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What is “Low-risk” DCIS & Why is The COMET Study Urgently Needed?

Posted on August 20, 2018 by Donna Pinto

The COMET Study is the nation’s first prospective, randomized clinical trial aimed at resolving an ongoing debate about the best way to manage “low-risk” DCIS (Ductal Carcinoma In Situ), also known as “stage zero” breast cancer. “This is a trial … Continue reading →

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DCIS — Beyond “One-Size Fits-All”

Posted on June 12, 2018 by Donna Pinto

Today, women newly diagnosed with DCIS have more support, options, and resources than ever before. Below are eight ways to help you create an “individualized” and empowered plan-of-action… #1.  CONFIRM YOUR PATHOLOGY Dr. David J Dabbs, Prelude Dx Second Opinion … Continue reading →

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